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Never give up!

I started The Amanda Vorhies Foundation in 2006 to help change the lives of families who has children with special needs. Having a special needs child myself I know how challenging it can be.


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Amanda's Story

Amanda was NOT expected to survive birth. She was diagnosed with Hydrocephalus (water on the brain) while still in the womb. well, after two brain surgeries to drain the fluid at 8 months old, a shunt placed it to continuously drain the fluid that she will live with forever, several illnessed that resulted to extended stay at the hospital to determine what they were, that still can't be explained over the past 4-1/2 years. And to be diagnosed with Cerebral Palsy, Epilepsy and mental retardation. We deal with the seizures about every month, which is not too bad, but her seizures can last for 45 minutes at a time, and that's with controlled medicine. She is developmentally delayed, but is doing surprisingly well, since the doctors told us she would be a vegitable. She says at least two to three word sentances, but can repeat everything she hears, including the bad words she has managed to pick up. That bring us to the present time.